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How ppi makes a difference

Patients and the Public have an impact

Our PPI Contributors get involved in our research because they want to make a positive contribution.  There are many ways in which their impact can be felt; as it relates to the research (e.g. data collection, design and delivery, time and cost) or as it relates to the people involved (e.g. members of the public involved in research, academic researchers and funders).

Some impacts may be seen in the short term (e.g. on patient information documents) others may take longer to be seen or be more complex to identify (e.g. on recruitment of participants to trials). 

Here Kath explains how her role as a PPI Contributor has had an impact on her (follow this link to find out from many other lay contributors more about patient & public involvement and why they got involved)

 “[…] it’s helped me to create a new way of being in the world and it’s been part of that process. For me, it’s been a very valuable part because it has meant that I can take the experiences that I had previously with me. I’ve met some of the most amazing people doing really incredible things and learnt a huge amount about what’s going on in research that I had no idea about how that happened and how that worked before. So it’s just been massive. It has very much transformed my life really.” 

An example of PPI impact on our research

“PPI input was important in our project on people’s willingness to accept over detection in cancer screening. We wanted to survey members of the public, to see how much over detection they think is acceptable in cancer screening (over detection is detecting cancer that would not have otherwise caused any symptoms). The research team designed a survey for members of the public, and we asked our PPI group to try out the survey and tell us how easy it was to understand and answer, and to suggest ways we could improve it. We were then able to improve the survey, to make sure that it was accessible to the public, and would produce valid results. This led to us publishing the results in the British Medical Journal.”  Dr Caroline Jones, Senior Researcher

Find out more about some of the national and local impacts of patient & public involvement in health research in our newsletter or at the INVOLVE website


Karen Maskell

Karen Maskell won the award for her role in the HealthMaker programme 

HealthMakers is a group of volunteers with long term health conditions living in Bracknell and Ascot who:
• Offer peer support to teach others how to manage their long term health conditions. So far our HealthMakers have made a difference to the lives of 50 people in Bracknell
• Deliver training to help others become HealthMakers and make a difference
• Act as Patient Partners who work closely with local health services to improve patient care and quality of life

Our PPI Contributors got involved in helping to shape our PPI strategy, PPI Guide for Researchers and Welcome Pack