Data privacy: the UK situation
Routinely collected health data in the increasingly integrated UK National Health Service offer a huge resource accessible for research. The process of integration required standardisation of coding to facilitate interoperability across separate domains. Among other successes this has enabled the derivation and validation of risk algorithms based on large, modern primary care populations. Anonymisation is the basis for the legitimate secondary use of the data. This presentation will describe these issues in the context of iDASH, and offer a UK perspective on primary care database research and the barriers to data sharing. Examples of relevant current projects will be described.