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© 2016 Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.

Original publication




Journal article


Journal of Neonatal Nursing

Publication Date





236 - 243