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As a chronic illness long Covid can have a dramatic effect on individual and family life, schooling, and relationships. Debilitating symptoms may last months, or years. Our team in the Medical Sociology & Health Experiences Research Group (MS&HERG) have been finding out how family life has been transformed by having, or caring for someone with, long Covid.
Beachside bites and big ideas: shaping UK food policy in Bridlington
Public engagement & involvement
Researchers in our COPPER study are working to find food subsidies and taxes that could make healthier and sustainable foods more affordable in the UK. Using funding from the University's Medical Sciences Division Participatory Research Seed Fund, the team canvassed the people of Bridlington to find out what the public think.
Bringing together statisticians and patient and public contributors: our first PPIE Meets Statistics Training Event
Cancer Public engagement & involvement
Statistics is important in medical research but there are not many opportunities for PPIE contributors to engage with statisticians or learn about the statistical aspects of medical research. PPIE contributors often remain uncertain of what statistics is and the role of a statistician. We want to change that – the ‘PPIE Meets Statistics Training Event’ run by our Cancer group and PPI colleagues was the first step towards this goal.
Ends and new beginnings: Research on the social prescribing link worker role
Patient experience Public engagement & involvement
In recognition of Social Prescribing Day, Thursday 14 March 2024, Stephanie Tierney from the Centre for Evidence Based Medicine, University of Oxford reflects on a study that has recently finished on the implementation of the link worker role, and on another that is in progress on this topic.
From Idea to Impact: Strengthening PPI Through Training and Accreditation
Patient experience Public engagement & involvement
In this blog post, Polly Kerr explores the journey of a project born out of a challenging situation, which led to a call for stronger PPI support systems in health and care research. Discover how a single workshop led to a nationwide initiative to enhance PPI in health and care research.
A patient and public involvement (PPI) workshop for the improvement of women’s health technologies
Patient experience Public engagement & involvement
Beyond the Binary: An Intersectional Approach to Digital Health Disparities for Marginalised Women
Digital health & innovation Health Services Research Health experiences Patient experience Policy & health systems Public engagement & involvement
Digital health disparities disproportionately affect marginalised women, making it challenging for them to access healthcare services. These women may face multiple hurdles such as lack of accessibility to digital technologies, gaps in language and translation support, low health and digital literacy, dismissive attitudes of healthcare providers, and the adverse impact other aspects of social policy have on their health and ability to access care.
Meat Your Persona: a travelling exhibition
General Global perspective Policy & health systems Public engagement & involvement Staff stories
Lucy Yates, Public Engagement Coordinator for the multi-disciplinary Livestock, Environment and People (LEAP) research programme talks us through the development, delivery, and what was learnt from creating a national touring installation to support the public to engage with the environmental and health impacts of meat eating.
Leveraging Faith Based Organisations in Raising Awareness on Pulse Oximetry: an exploratory mini-study
COVID-19 Department Policy & health systems Public engagement & involvement
Written by Laiba Husain and Yusra Shammoon
COVID-19 pandemic: Can the cultural and heritage sectors support older people’s well-being through social prescribing?
COVID-19 Public engagement & involvement Research methods & EBM
Stephanie Tierney (Senior Researcher and Departmental Lecturer) and Kamal R Mahtani (Associate Professor and GP), Centre for Evidence Based Medicine, University of Oxford
Setting the research agenda in advanced heart failure
Infection, Respiratory and Acute Care Public engagement & involvement
Dr Nick Jones, Wellcome Trust Doctoral Research Fellow, writes about the Research Priorities in Advanced Heart Failure project, which has now published its top 10 priorities for the research community.
British South Asian patients’ views on text messages to support type 2 diabetes
Patient experience Public engagement & involvement Research methods & EBM
The number of people with type 2 diabetes is increasing globally, a condition that disproportionately affects South Asians. Text messages to support people to manage their diabetes show promise. They are cheap, accessible, and can positively impact blood sugar levels. Senior Qualitative Researcher Dr Suman Prinjha writes about her research (published in JMIR mHealth and uHealth) on how a text messaging system could support medication use in British South Asian people with diabetes.
Meat your persona: talking to Oxford's shoppers
Health behaviours Public engagement & involvement
The LEAP team have been talking to shoppers to learn more about their meat and dairy consumption and to share the results of their research into the environmental and health impacts with the public.
Scientific and lay authors: writing together
Public engagement & involvement Research methods & EBM
Lynne Maddocks, NDPCHS and NIHR CLAHRC PPI Co-ordinator, interviews one of the lead authors and lay co-authors of the recently published scientifc paper. The paper argues for a re-think in how doctors talk to their patients about kidney health, suggesting it should be about ‘kidney age’ not ‘kidney disease.’
Eating for an environmentally sustainable future
Health behaviours Public engagement & involvement
Helen Adams, Public Engagement Coordinator for the Livestock, Environment and People (LEAP) project, introduces the project and writes about the team’s first foray into public engagement at Super Science Saturday in March 2018. Outreach is not just a lot of fun, but can help influence the research too…
Yarnfulness: Engaging the public in research on well-being through craft
Health Services Research Public engagement & involvement
SPCR Research Fellow Dr Emma Palmer-Cooper and Health Psychology Researcher Dr Anne Ferrey write about an innovative public engagement project that sets out to investigate whether yarn-based crafting can improve health and wellbeing. The project recently received a University of Oxford Public Engagement with Research Seed Fund Award.
Big Data: How codebreakers helped transform healthcare
Infection, Respiratory and Acute Care Public engagement & involvement Research methods & EBM
Professor Carl Heneghan, Director of the Centre for Evidence Based Medicine and Official Fellow of Kellogg College, discusses the role of code breaking in healthcare, linking its use to the famous Enigma Machine and explaining why the department is linking up with Kellogg College's upcoming 'Bletchley Park Week.'
Training for public contributors
Public engagement & involvement
PPI Coordinators Lynne Maddocks (NIHR CLAHRC Oxford and Nuffield Department of Primary Care Health Sciences) and Polly Kerr (NIHR Oxford BRC) discuss their initiative to provide training for their public contributors in some of the essentials of medical research, and why this is important.
EBM for under 18s: equipping the next generation to think critically about healthcare
Public engagement & involvement Research methods & EBM
Professor Carl Heneghan describes a school's outreach programme designed to bring EBM to young people.
Publication bias: IN CAKE FORM. DataLab at the Curiosity Carnival
Public engagement & involvement Research methods & EBM
Dr Helen Curtis writes about her experience at Oxford's Curiosity Carnival.
Opening the door to a by-gone age of healthcare
General Public engagement & involvement
Dan Richards-Doran reflects on the Oxford Open Doors event, and what it means to be involved.