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This journal strongly supports the sharing of data to support research and quality improvement. However, this needs to be done in a way that ensures the benefts vastly outweigh the risks, and vitally using methods which are inspire both public and professional confdences - robust pseudonymisation is needed to achieve this. The case for using routine data for research has already been well made and probably also for quality improvement; however, clearer mechanisms are needed of how we test that the public interest is served. Ensuring that the public interest is served is essential if we are to maintain patients' and public's trust, especially in the English National Health Service where the realpolitik is that patients can opt out of data sharing. Copyright © 2014 The Author(s).

Original publication

DOI

10.14236/jhi.v21i2.68

Type

Journal article

Journal

Informatics in Primary Care

Publication Date

01/01/2014

Volume

21

Pages

61 - 63