Search results (33)
« Back to PublicationsUsing Non-Standard Research Methods to Explore the Perspectives of People With Intellectual Disabilities on Sensitive Topics: A Discussion of the Research Paradigm, Data Collection Methods and Data Analysis
Journal article
Tuffrey-Wijne I. et al, (2026), Journal of Applied Research in Intellectual Disabilities, 39
Family resistance to end-of-life prognosis in hospice care: A conversation analytic single case analysis.
Journal article
Anderson-Kittow R. and Bloch S., (2026), Patient Educ Couns, 149
Getting It Out There: Reflections on the Process and Impact of Public Engagement Activities in a Study on End-of-Life Care Planning With People With Intellectual Disabilities
Journal article
Bruun A. et al, (2026), Health Expectations, 29
Communication during out-of-hours primary care contacts for people with a terminal illness: a scoping review
Journal article
Anderson-Kittow R. et al, (2026), BMJ Open, 16
Developing service models for adult palliative and end of life care for people with a learning disability (The DAPPLE Project): Protocol for a mixed-method study
Journal article
Tuffrey-Wijne I. et al, (2025), BMJ Open, 15
Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities Within Adult Social Care Settings: A Multi-Phase Study
Journal article
Tuffrey-Wijne I. et al, (2025), Journal of Applied Research in Intellectual Disabilities, 38
Evaluating a toolkit for end-of-life care planning with people with intellectual disabilities: An exploration of implementation outcomes within intellectual disability social care services
Journal article
Bruun A. et al, (2025), Journal of Intellectual Disabilities
Reflections on an Evidence Review Process to Inform the Co-Design of a Toolkit for Supporting End-of-Life Care Planning With People With Intellectual Disabilities
Journal article
Tilley E. et al, (2024), Health Expectations, 27
The All Together Group: Co-Designing a Toolkit of Approaches and Resources for End-of-Life Care Planning With People With Intellectual Disabilities in Social Care Settings
Journal article
Bruun A. et al, (2024), Health Expectations, 27
Development and evaluation of a personalised psychological intervention to improve adherence to photoprotection in adults with Xeroderma Pigmentosum (XP)
Journal article
Sarkany R. et al, (2024), Programme Grants for Applied Research, 12
Improving support and planning ahead for older people with learning disabilities and family carers: a mixed-methods study
Journal article
Ryan S. et al, (2024), Health and Social Care Delivery Research, 12
What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group study.
Journal article
Bruun A. et al, (2024), Palliat Med, 38, 669 - 678
Co-designing resources to support older people with intellectual disabilities and their families plan for parental death and transitions in care
Journal article
Anderson-Kittow R. et al, (2024), Health Expectations, 27
‘There's a timebomb’: Planning for parental death and transitions in care for older people with intellectual disabilities and their families
Journal article
Anderson-Kittow RJ. et al, (2024), Journal of Applied Research in Intellectual Disabilities, 37
“My name on the door by the Professor's name”: The process of recruiting a researcher with a learning disability at a UK university
Journal article
Anderson RJ. et al, (2023), British Journal of Learning Disabilities, 51, 460 - 468