Primary care Endometriosis and Adenomyosis Research and Learning network

Our Mission

Our aim is to bring together an international collective of primary care and community researchers and clinicians interested in endometriosis and adenomyosis. We want to explore all experiences of symptoms associated with these conditions, such as chronic pelvic pain, with or without an additional explanatory diagnostic label, which can impact on people's quality of life from a holistic community approach.

We want to create a collaborative forum where we can share research from, within, and about primary care to exchange insights, develop innovative approaches and collaborations, and build consensus on best practice ideas for real-world primary care settings. We want to develop and share knowledge and learning that can help bridge the gap between primary care and specialist services, across a range of research and clinical disciplines.

Primary care is a critical and underexplored part of endometriosis and adenomyosis patient journeys. We believe that by strengthening the multidisciplinary primary care foundation, we can construct a more responsive, equitable and compassionate healthcare system for the millions affected by these conditions.

Why Primary Care Matters in endometriosis and  adenomyosis

Primary care is typically the first point of contact for patients experiencing symptoms related to endometriosis and adenomyosis. Endometriosis and adenomyosis are long-term conditions and primary care is integral to holding care and providing support before, during, and in between episodes of specialist input. Primary care in relation to endometriosis and adenomyosis is relatively under-researched. Our network will create a community of primary care researchers and clinicians to collectively share and develop understanding to help:

• Understand how primary care can be part of reducing delays in diagnosis for patients.
• To develop primary care relevant training and resources to promote awareness about these conditions
• To evaluate the impact of these interventions in primary care, and share evidence-based resources and ideas
• To build bridges between primary and specialist care settings, to enable smoother patient journeys and enable bi-directional learning 
• To share information about primary care relevant evidence-based management options
• To promote equity and strive to identify, document, and mitigate against health inequalities
• Understand how to strengthen primary care responses to symptoms, so that all patients feel supported and heard.

Our network aims to address these challenges through collaborative research, education, and advocacy.

Our Objectives

1. Research Collaboration: Facilitate international research projects focused on primary care aspects of endometriosis and adenomyosis
2. Knowledge Exchange: Share clinical insights, research findings, and best practices across different healthcare systems
3. Education & Training: Develop resources for primary care professionals to improve recognition and management
4. Patient Partnership: Work alongside patients to ensure research and interventions address their needs and priorities
5. Policy Influence: Advocate for improved primary care pathways and resources for these conditions

Join Our Network

We welcome health and care professionals working in primary or community care, researchers, allied health professionals, and anyone with an interest in improving primary care for endometriosis and adenomyosis.

By joining our network, you will:

• Connect with like-minded professionals worldwide
• Receive updates on the latest research and developments
• Have an opportunity to shape and develop this network 
• Have opportunities to participate in collaborative projects
• Access resources and educational materials
• Contribute to shaping the future of primary care for these conditions

Click the button below to complete the sign up form.