We are forming a partnership involving patients, carers, charities, healthcare professionals and researchers to find out what is important in heart failure research for the most important people - those affected by the condition. Help us by completing our survey, promoting this research and sharing the results.
The importance of involving those directly affected by a condition in identifying research priorities to ensure the findings are relevant is increasingly being recognised. The aim of this project is determine a 'top ten' list of research priorities for patients with advanced heart failure.
The Universities of Oxford, Bristol and Cambridge are working together to establish a Priority Setting Partnership (PSP) following the methods set out by the James Lind Alliance – a charitable organisation committed to ensuring those most touched by a condition are involved in prioritising research.
The steering group includes those affected by advanced heart failure including patients, carers and clinicians involved directly in heart failure care. An initial online survey will determine what the priorities for advanced heart failure research should be. The members of the steering group will promote the survey through their ‘wider partner networks’ which include patient groups, healthcare clinics and through relevant websites such as heart failure charities and local NHS trusts.
The survey results will be checked against what is already known about heart failure treatment to see where there are gaps in knowledge. Priorities will then be sorted to generate a short list for discussion at a final workshop where a ‘Top 10’ priority list will be agreed. These priorities will be used by researchers to apply for funding to undertake projects which could improve care for patients with advanced heart failure in the future.