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Jennifer Bostock

Jennifer’s interest in heart failure comes from caring for her mother who has the condition and her father who also had it before he died. She has seen the way that the condition has affected not just her mother’s health, but her social and domestic life and is keen to help set research priorities to try and help some of these difficulties. She has worked on a JLA for infection research which is currently ongoing and works in PPI to try and stimulate involvement at the earliest stages of research such as via the JLA process. Jennifer has been working in Research Ethics & Patient/Public Involvement for over 10 years, as a lead reviewer & Vice Chair for an NHS (MCA) REC, visiting academic/lecturer at the medical school at King’s College & as a trainer working for organisations such as the mental health research network & the HRA. Sitting as an Ethicist on the Marie Stopes International Ethics Committee & Ethics Lead to RDS London.  She is also a Lay member of the Independent Funding Panels at NHS England and a local CCG & funding panel member at the NIHR & Cancer Research UK. She is a former Wellcome Trust Biomedical Ethics Prize Scholar & winner of the MHRN Award for ‘Outstanding contribution to psychiatry research’.  Jennifer is a former CQC MHA Commissioner; NICE GDG; Topic Expert & Quality Standards Panel member; NHS Patient involvement lead; GP Performance and RCGP Quality Assessor. Lay member on the National Clinical Audit & Confidential Enquries Advisory Board & HQIP.  Her current Board memberships include the International Strategic Advisory Board at Cambridge University (pub health), School of Pub Health (NIHR) & Quality Outcomes Research Unit. Jennifer has written for the specialist, NHS & academic press and has co-authored book chapters & is a lay peer reviewer for the DOH, the NIHR & Health Expectations. Jennifer chairs a number of groups including: NHS MHAct appeals panel; NHS IFR & PPI Reference Group & is the Lay Chair of the Apollo Expert Advisory Group at QMUL & the UsPex Study Lay Panel at the University of Oxford.

John Burden 

I am 70 years old and was diagnosed with heart disease in 2000. My previous career background is mostly in education. I taught Geography in a secondary school for 10 years before joining the Herts CC Advisory Service where I eventually became an education adviser and inspector. I retired early for health reasons but spent a further 10 years as a part time education tutor at the Univ of Hertfordshire. I have a complicated cardiac history including a diagnosis of Heart Failure in 2013 but this is currently well controlled by medication. Despite this I live an active life in retirement.



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Patient and Carer Representative


Patient and Carer Representative

I am an electrician from Nottingham. I was diagnosed with heart failure in 2012. Before diagnosis I was fit and healthy and although my illness was caused by a virus, I don't remember being sick that year. I now do a fair amount of work for the heart failure charity, Pumping Marvellous. My passion lies in helping newly diagnosed patients as I know this is the most confusing and difficult time for them and their families. 

Deb SMith

Patient and Carer Representative

I have cared for family members with serious heart problems. I live in The Midlands and have a lot of experience in helping with Patient & Public Involvement and a wide range of research experience, networks and knowledge. 


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Heart Failure Nurse Specialist

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Consultant Geriatrician

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Consultant in Palliative Medicine

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Research Fellow

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GP and Health Services Researcher

Rachel Johnson is a GP, a health services researcher, and one of the team who has set up this priority setting partnership.  Rachel’s research focuses on heart problems (including several looking at heart failure) and on high blood pressure. 


NIHR Academic Clinical Fellow in General Practice

I am a Academic Clinical Fellow training in General Practice. My main research interests are in cardiovascular medicine including atrial fibrillation and heart failure. I chose a career in General Practice because I love the variety of the work and opportunities: I am involved in teaching as an Oxford University Medical Education Fellow and have a Masters in Clinical Education from Newcastle University. I have also previously worked internationally in Australia and South Africa as well as experiencing pre-hospital work mountaineering in Nepal and volunteering with the Royal National Lifeboat Institution.

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Retired GP and Professor of the Shared Understanding of Medicine

Richard is a retired GP whose interest in heart failure dates back 30 years when his father had the condition. He has conducted research in the area and put together the first book on the subject of heart failure and palliative care. He is currently Professor of the Shared Understanding of Medicine at the University of Birmingham.

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GP and Clinical Researcher

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Lead Nurse and Community Heart Failure Service Operational Manager

Bev is the lead nurse and operational management for the Community Heart Failure Service in Bristol Community Health. She set up and has led the development of the service over the past 13 years, working closely with key stakeholders. 

Bev has an extensive cardiology nursing background in both the acute and community setting. 

Currently a member of the Bristol, North Somerset and South Gloucestershire Heart failure working group and member of the British Heart Failure Society. 

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GP and NIHR Academic Clinical Lecturer

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Consultant Cardiologist in Heart Failure and Inherited Cardiac Conditions and Clinical Lead for Heart Failure


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James Lind Alliance

I am freelance consultant and have been working with the James Lind Alliance since early 2017 as an Adviser.  I am privileged to be working with the Advanced Hearth Failure JLA Priority Setting Partnership, and support several other JLA PSPs.

I have recently retired from 30 years of working in the NHS. My NHS career started with running clinical trials in cancer, then as a Hospital Medical Physicist, working in research into non-invasive diagnostics. For most of my NHS life, I have worked in ensuring that the patient voice is heard, respected and understood. More recently I worked in health informatics and health economics supporting various national projects. In the voluntary sector I have held roles as trustee, facilitator and in evaluation.

Currently I am also a section editor for the Journal of Innovation in Health Informatics, and a member of the RCGP Research Awards and Research Paper of the Year panels. I do occasional consultancy in Health Informatics, Health Economics, and communication of risk. 

Sarah Morrish

Sarah morrish

Priority Setting Partnership (PSP) Coordinator