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Do you have experience of urogynaecological conditions (including pelvic organ prolapse, bladder problems, urinary incontinence, and recurrent urinary tract infection)? Would you like to share your experiences to develop a new web resource for patients and healthcare professionals? Please get in touch with the study team and we’ll tell you more about the study: pursue@phc.ox.ac.uk

 
Urogynaecology is a subspecialty of gynaecology that evaluates and treats conditions of the female pelvic organs, supporting muscles and tissues as related to urinary function. Some examples of urogynaecological conditions are pelvic organ prolapse, bladder problems, urinary incontinence, and recurrent urinary tract infections (UTI).

Aims:

We aim to understand the experiences of people who have urogynaecological conditions and may have used or plan to use urogynaecological health services in the UK. We will use this learning to support patients, inform healthcare professionals, and help shape health services.

Why is this important?

Urogynaecological conditions can physically and emotionally impact on people's mental health, relationships, work, and social lives. There has been little research about experiences of urogynaecology health services in the UK. By listening closely to patient voices, better support and information can be offered and services improved.

METHODS

We want to talk to people about what it has been like to have urogynaecological conditions, to see healthcare professionals, and to have treatments. We want to hear about a wide range of experiences. We are interested in talking to anyone with urogynaecological conditions, including those who identify as trans, intersex or non-binary. The interviews will take place online or over the phone.

How could THIS benefit patients?

We will use the interviews to develop an online resource on the Healthtalk.org website. This resource will give information and support based on what we learn from participants in the study. The website will summarise the key findings and, with permission, we will use participants’ own words and excerpts from their interviews. The Healthtalk resource can be used by anyone, including patients, their friends and families, healthcare professionals, charities, researchers and policy makers.

We will use the study findings to help inform and support healthcare professionals and policy makers to improve health services. We will make a short film for use in service improvement and present it at a final event for UK policy makers and other stakeholders. We will also publish our findings in high-quality journals and present them at healthcare conferences.

If you would like to know more about the study or might be interested in taking part, please get in touch with the study team by emailing pursue@phc.ox.ac.uk or phoning 07920502580.

Further information: Participant Information Leaflet (pdf)

Logo with text: PURSUE - People with urogynaecological conditions: understanding experiences.

Research team

Abigail McNiven
Senior Qualitative Researcher, Nuffield Department of Primary Care Health Sciences

Abigail McNiven

Francine Toye
Senior Qualitative Researcher, Oxford University Hospitals NHS Foundation Trust

FrancineToye.jpg

Ashley White
Qualitative Researcher, Nuffield Department of Primary Care Health Sciences

Ashley White

Sue Ziebland
Professor of Medical Sociology and Co-Director of MS & HERG, Nuffield Department of Primary Care Health Sciences

Sue Ziebland

Karen Barker
Oxford University Hospitals NHS Foundation Trust, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Science

KarenBarker.jpg

Matthew Izett-Kay
Oxford University Hospitals NHS Foundation Trust

MatthewIzett-Kay.jpg

Sharon Dixon
NIHR In Practice Fellow, Nuffield Department of Primary Care Health Sciences

Sharon Dixon

Louise Locock
Professor in Health Services Research Unit, University of Aberdeen

Manar Marzouk
PPI Project Lead

ManarMarzouk.jpg

Adam Barnett
CEO, HealthTalk

Further information

Full project title: 
A qualitative study of people's experiences of urogynaecology health services in the UK

Length of project:
March 2021 – December 2022

Funder:
National Institute for Health Research, Policy Research Programme