Public involvement in research
Also known as Patient & Public Involvement or PPI - we are transforming care by understanding and using patient and public experience.
What is public involvement?
Public involvement in research is an active partnership between the public and researchers in the research process, not simply people being the subjects of research.
The public (PPI Contributors) include patients, potential patients, carers and people who use health services as well as people from organisations that represent people who use services. Other terms for PPI Contributors include PPI representatives, patient advocate, lay researcher, public partner etc.
The Nuffield Department of Primary Care Health Sciences is committed to continually improving PPI, and has developed a clear strategy for how this will be taken forward.
WHY IS PUBLIC INVOLVEMENT IN RESEARCH IMPORTANT?
PPI Contributors can make a difference to health research by:
- identifying new topics for research and ensuring that topics are relevant to patients, carers and members of the public
- making sure that researchers ask the right questions and in a way that the public understand
- keeping the research on track so that it stays relevant
- making sure the people being researched are approached in the right way
- improving the quality of the research by adding another point of view to the design and way that the research is carried out.
Patient and public involvement case-studies
A collection of short case studies featuring department members for researchers showing the different ways patient and public involvement can be carried out and how its helped to shape peoples research, via the NIHR CLAHRC Oxford website.
- Working with PPI contributors under 25 years old - Susan Kirkpatrick
- Running an ongoing PPI group - Phil Turner
- Attending an existing group to do PPI - James Sheppard
- Using a blog to get PPI input before a funding application - Louise Locock
- Running an advisory group - Filippo Bianchi
- Working with PPI contributors to co-produce a cCBT package - Jane Fossey