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What is patient and public involvement in research?

Patient and public involvement (PPI) in research is an active partnership between patients/public and researchers in the research process. It is not simply people taking part in research studies.

The public (PPI contributors) include patients, potential patients, carers and people who use health services as well as people from organisations that represent people who use services. There are many terms for PPI contributors such as PPI representatives, patient advocate, lay researcher, public partner - you may prefer another description.

The Nuffield Department of Primary Care Health Sciences is committed to continually improving and developing its PPI, and is in the process of producing an updated strategy to demonstrate this.

For researchers - PPI checklist

WHY IS it important?

PPI contributors can make a difference to health research by:

  • identifying new topics for research and ensuring that topics are relevant to patients, carers and members of the public
  • making sure that researchers ask the right questions and in a way that the public understand
  • keeping the research on track so that it stays relevant
  • making sure the people being researched are approached in the right way
  • improving the quality of the research by adding another point of view to the design and way that the research is carried out.

PPI Leads