PrimDISC Committee
Primary Care Hosted Research Datasets Independent Scientific Committee (PrimDISC)
The department has developed a unified approvals process for accessing departmental data resources. This includes applications to use primary care research datasets, and for the re-use and re-analysis of existing Departmental Trials, Cohorts or other studies.
An independent committee, PrimDISC, reviews the applications. PrimDISC acts on behalf of the NDPCHS Research Committee.
PrimDISC functions to provide access to NDPCHS assets only as some resources, including CPRD, Opensafely and QResearch, require different modes of application.
VACANCY: EXPERT AND LAY MEMBERS
If you are interested in joining the PrimDISC as an Expert or Lay Member, please get in touch via primdisc@phc.ox.ac.uk.
Please find below the role description:
Advert PrimDISC_Expert member_2024.pdf
139 KB, PDF document
Advert PrimDISC_Lay member_2024.pdf
152 KB, PDF document
What are the core aims of this committee?
- Provide timely and high-quality peer review of the scientific (medical, epidemiological, methodological) merit of research protocols proposing access and use of the patient data within its remit
- Provide timely and high-quality peer review of the feasibility, quality and public health value of applications proposing the use of the patient data within its remit
- Follow the criteria and principles set out by the NDPCHS Research Committee in assessing and advising on research applications to access NDPCHS databases
- Assess and advise on ethical or confidentiality issues that may arise during access and/or use of the patient data within its remit in research studies, taking into consideration input from the research ethics committees or other groups, as relevant
- Follow the criteria and principles set out by the relevant oversight boards in assessing and advising on applications to access the databases
- Review internal workings of the Committee to ensure consistency, efficiency and high standards of peer-review are maintained
- Advise the research teams on technical issues that may arise
- Advise on other specific issues within its remit, as requested
- Assess if the proposed project requires ethical approval and to make any positive evaluation contingent to confirmation that this has been obtained.
Summary of the application flow:
1) Applications for data access submitted to Secretariat via primdisc@phc.ox.ac.uk
2) Feasibility and design aspects of application are vetted : Secretariat will advise applicant if further information is required.
3) Complete applications: 2-3 lead reviewers assigned
4) All applications circulated to committee ahead of meeting for information
5) At the monthly meeting, lead reviewers present review of each application
6) Committee decides on outcomes: accept; revise and resubmit; reject
7) Secretariat notifies applicant
8) Where relevant, approvals, contracts, etc. finalised.
9) Research team liaises with applicant regarding time lines, access to data, etc.
How could this be of benefit to patients?
Committee members make an important contribution to ensuring the quality and robustness of all research studies using primary care data from the department, therefore, increasing the likelihood that these studies will go on to improve patient care in the NHS.
Application Form
PrimDISC Application Form.docx
29 KB, Microsoft Office - Word Document
DATES of PrimDISC COMMITTEE MEETINGS AND SUBMISSION DEADLINES
24th June 2024 - submission deadline 31st May
29th July 2024 - submission deadline 5th July
30th September 2024 - submission deadline 6th September
28th October 2024 - submission deadline 4th October
25th November 2024 - submission deadline 1st November
List of approved applications
PD-0036-2024 National Enhanced Service Scheme Evaluation (NESIE)
PD-0035-2024 Description and validation of a new digital phenotype for identifying cases of acute respiratory infections (ARI) from the primary care electronic health record for respiratory sentinel surveillance
PD-0033-2024 Differentiating COVID-19 Infection Outcomes by Immunosuppressed Subgroups
PD-0032-2023 Health care costs associated with the AstraZeneca and Pfizer COVID-19 vaccines
PD-0030-2023 Intensive surveillance of acute respiratory infections (ARI) in primary care with a focus on respiratory syncytial virus (RSV): prospective sentinel network observational study (Moderna ObservatARI)
PD-0028-2023 Welcome Project
PD-0025-2023 OPAL
PD-0024-2023 Demonstrating the feasibility of a Learning Health System for cancer diagnosis in primary care (CRUK)
PD-0023-2023 Assessing the Contributions of Additional Role Practitioners to general practice in England (CARPE) V1
PD-0021-2023 LOCOMOTION
PD-0020-2023 Estimating prevalence of influenza-like illness and COVID-19 using non-traditional, user generated data streams
PD-0019-2023 PIMAS study
PD-0018-2023 COMNET
PD-0017-2023 Could social prescribing contribute to type 2 diabetes prevention in people at high risk? A population-based study using primary care data
PD-0016-2023 HEALD
PD-0013-2023 VU SYNTHESIS IPD project
PD-0009-2022 The ACD (Atrial Fibrillation, Chronic Kidney Disease, DOACs) Study. DOAC Adherence, persistence and monitoring in Atrial Fibrillation and CKD
PD-0006-2022 LONGKid
PD-0005-2022 Kidney Outcome Trials
PD-0004-2022 Applicability of Guidelines
PD-0003-2022 COMBIKID
PD-0002-2022 OSCAR
PD-0001-2022 SHIP
CR-0105-2021 Predicting the health and economic consequences of standardised diagnostic pathways for hypertension compared to existing hypertension diagnostic parkways